United Stroke Alliance Resources

Welcome to our resource pages. Over the years, we have collected information that we have found to be helpful in stroke recovery. Although Retreat & Refresh Stroke Camp is providing the following resources, we do not endorse any particular book, author, service or product. It is our hope you will find these resources helpful.

Download Full Book List
Download Resources for Stroke Survivors and Families

Books & Magazines

Rehab & Recovery

The Stroke Recovery Book: A Guide for Patients and Families
by Kip Burkman and Stephanie Mensh
How To Conquer the World with One Hand...and An Attitude
by Paul E. Berger and Stephanie Mensh
How To Conquer Hobbies with One Hand: 50 Tips and Tools to Make Things
by Paul E. Berger and Stephanie Mensh
One-Handed in a Two-Handed World
Tommye-Karen Mayer
After a Stroke: 300 Tips for Making Life Easier
by Cleo Hutton
The Brain that Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science
by Norman Doidge, M.D.
Hope: A Stroke Recovery Guide
by the National Stroke Association
(Order a bound copy by calling 1-800-STROKES or go online www.stroke.org to download and print a free copy)
100 Questions & Answers About Stroke: A Lahey Clinic Guide
Kinan K. Hreib, M.D., Ph.D.

Books for Survivors

Different Strokes: An Intimate Memoir for Stroke Survivors, Families, and Caregivers
by Steven Boorstein www.survivingstroke.com
Like A Bolt: Tragedy to Triumph After Stroke As I Lived It
by Mary Morgan
Stroke, Brain Assault
by Madelina A. DePaz
Take Brave Steps For Stroke Survivors and Families: A Message of Motivation and Hope
by Ron Gardner
My Stroke of Insight: A Brain Scientist's Personal Journey
by Jill Bolte Taylor, Ph.D.
I'll Carry the Fork! Recovering a Life After Brain Injury
by Kara L. Swanson
My Year Off: Recovering Life After a Stroke
by Robert McCrum
Rewire Your Brain, Rewire Your Life: A Handbook for Stroke Survivors & Their Caregivers
by Bob Guns
Stroke Diaries: A Guide for Survivors and their families
by Olajide Williams, MD
The Fire Within: A True Story of Triumph Over Tragedy
by Valerie L. Green
A Stroke of Genius: Messages of Hope and Healing From a Thriving Stroke Survivor
by Sandy Simon
Don't Leave Me This Way: Or When I Get Back on My Feet You'll Be Sorry
by Julia Fox Garrison
A Piece of Her Mind: A Mother-Daughter Journey Through Stroke and Recovery
by Mona Gupton and Stacy Gupton
Into the Blue: A Father's Flight and A Daughter's Return
by Susan Edsall

Books for Caregivers

Who Cares: A Loving Guide for My Future Caregivers
by Dee Marrella
The Comfort of Home for Stroke: A Guide for Caregivers
by Maria M. Meyer and Paula Derr, RN with Jon Caswell, Stroke Connection Magazine
Living With Stroke: A Guide for Families
by Richard Senelick, M.D., and Karla Dougherty
The Magic of Humor in Caregiving
by James R. Sherman, Ph.D.
Positive Caregiver Attitudes
by James R. Sherman, Ph.D.
Creative Caregiving
by James R. Sherman, Ph.D.
The Tough & Tender Caregiver: A Handbook for the Well Spouse
by David A. Travland, Ph.D. and Rhonda Travland
Nursing Homes and Assisted Living: The Family's Guide to Making Decisions and Getting Good Care
by Peter S. Silin
When The Time Comes: Families with Aging Parents Share Their Struggles and Solutions
by Paula Span
Lessons from the Ancients: A Humorously Helpful Guide for Caregiving
by J. Dyess Calhoun
Passages in Caregiving: Turning Chaos into Confidence
by Gail Sheehy
To Love What Is: A Marriage Transformed
by Alix Kates Shulman
Eureka! Memories and Motivations: A Strategy for Creating a Healing Home for the Stroke/Brain Injury Patient and Caregiver
by Madonna Siles C.P.C.
Port in The Storm: How to Make a Medical Decision and Live to Tell About It
by Cole A. Giller, M.D., Ph.D.
Brain, Heal Thyself: A Caregiver's New Approach to Recovery from Stroke, Aneurysm, and Traumatic Brain Injuries
by Madonna Siles
Share the Care
by Cappy Capossela and Sheila Warnock
Coping with Stroke: 50 Answers to Everyday Caregiver Challenges
by Monica Vest Wheeler

Children's Books

Now One Foot, Now the Other
by Tomie dePaola
Beamer Learns the Signs of Stroke and How to Help
by Cindy Chambers

Books on Aphasia

Talking About Aphasia
by Susie Parr, Sally Byng, and Sue Gilpin with Chris Ireland
Barkin' Dog: How to Talk with Aphasia
by Ed Bas
A Mind of My Own: Memoir of Recovery from Aphasia
by Harrianne Mills

Inspirational Books (not necessarily stroke specific)

You Can Do It! 105 Thoughts, Feelings and Solutions to Inspire You
By Paul Berger and Stephanie Mensh
The Power of Attitude
by Mac Anderson
The Blue Day Book: A Lesson in Cheering Yourself Up
by Bradley Trevor Greive
Loving What Is: Four Questions that can Change Your Life
by Byron Katie with Stephen Mitchell
The Ten Things to Do When Your Life Falls Apart: An Emotional and Spiritual Handbook
by Daphne Rose Kingma
In Praise of Slowness: Challenging the Cult of Speed
by Carl Honore
The Diving Bell and the Butterfly
by Jean-Dominique Bauby

Finances

Nolo's Guide to Social Security Disability: Getting & Keeping Your Benefits
by David A. Morton III, M.D.
How To Get SSI and Social Security Disability: An insider's Step by Step Guide
by Mike Davis

Online Support Resources

American Stroke Association is solely focused on reducing disability and death from stroke.

Annuity.org is a non profit educating people on annuities as well as provide information to watch for scams that may occur within the industry.

Assistedliving.org This guide helps those searching for assisted living homes overcome the two main barriers: choosing a home and figuring out how to pay for it. In this guide, you will learn about the different types of assisted living homes, how to choose the right home for you, how to pay for that home, and state-specific resources to assist you in your search.

ACLS.net Founded in 2010, ACLS Certification Institute is the largest online provider of emergency life support certification training. Thousands of healthcare professionals have successfully earned and maintained their certifications through our programs.

Caregiver.com is a leading provider of information, support, and guidance for family and professional caregivers, it is "For About and By Caregivers". The website includes topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver magazine, chat rooms, and an online store.

Caregiver Action Network is a resource for caregivers of all types

Caregiverstress.com is full of caregiving tips, assessments, and also provides caregiver solutions through their Home Instead Senior Care services.

Caregiving.org is a website by the National Alliance for Caregiving, a nonprofit coalition of national organizations focusing on issues of family caregiving.

Carepartnersresource.com is run by a Stroke Camp volunteer who has attended camp for five years, and who was a long time caregiver for her mother, a stroke survivor, and her father. She is a certified Journal to the Self instructor and offers both online and in person journaling classes for caregivers.

Consumersafety.org We provide consumers with the information to lead safe, healthy, and happy lives.

HelpGuide.org HelpGuide has an article that talks about caregiver stress and burnout while giving steps to rein in stress and regain a sense of balance, joy, and hope in your life.