Books, Magazines, & Links

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100 Questions & Answers About Stroke: A Lahey Clinic Guide

100 Questions & Answers About Stroke: A Lahey Clinic Guide

By Kinan K. Hreib, M.D., Ph.D.

amazon.com
After a Stroke: 300 Tips for Making Life Easier

After a Stroke: 300 Tips for Making Life Easier

By Cleo Hutton

amazon.com
After a Stroke: 500 Tips for Living Well

After a Stroke: 500 Tips for Living Well

By Cleo Hutton

A Guide for Patients and Families

amazon.com
A Mind of My Own: Memoir of Recovery from Aphasia

A Mind of My Own: Memoir of Recovery from Aphasia

By Harrianne Mills

amazon.com
A Piece of Her Mind: A Mother-Daughter Journey Through Stroke and Recovery

A Piece of Her Mind: A Mother-Daughter Journey Through Stroke and Recovery

By Mona Gupton and Stacey Gupton

amazon.com
Barkin’ Dog: How to Talk with Aphasia

Barkin’ Dog: How to Talk with Aphasia

By Ed Bas

amazon.com
Beamer Learns the Signs of Stroke and How to Help

Beamer Learns the Signs of Stroke and How to Help

By Cindy Chambers

amazon.com
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Brain and Life Magazine

By American Academy of Neurology

brainandlife.org
Brain, Heal Thyself: A Caregiver’s New Approach to Recovery from Stroke, Aneurysm, and Traumatic Brain Injuries

Brain, Heal Thyself: A Caregiver’s New Approach to Recovery from Stroke, Aneurysm, and Traumatic Brain Injuries

By Madonna Siles

amazon.com
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Bungalow Software – Speech and Language Software

By Speech therapists

Designed and tested

bungalowsoftware.com
Coping with Stroke: 50 Answers to Everyday Caregiver Challenges

Coping with Stroke: 50 Answers to Everyday Caregiver Challenges

By Monica Vest Wheeler

amazon.com
Creative Caregiving

Creative Caregiving

By James R. Sherman, Ph.D

amazon.com
Different Strokes: An Intimate Memoir for Stroke Survivors, Families, and Caregivers

Different Strokes: An Intimate Memoir for Stroke Survivors, Families, and Caregivers

By Steven Boorstein

amazon.com
Don’t Leave Me This Way: Or When I Get Back on My Feet You’ll Be Sorry

Don’t Leave Me This Way: Or When I Get Back on My Feet You’ll Be Sorry

By Julia Fox Garrison

amazon.com
Eureka! Memories and Motivations: A Strategy for Creating a Healing Home for the Stroke/Brain Injury Patient and Caregiver

Eureka! Memories and Motivations: A Strategy for Creating a Healing Home for the Stroke/Brain Injury Patient and Caregiver

By Madonna Siles C.P.C.

amazon.com
Get To Be Happy: Stories and Secrets to Loving the Sh*t Out of Life

Get To Be Happy: Stories and Secrets to Loving the Sh*t Out of Life

By Ted Larkins

amazon.com
Highs, Lows, and Plateaus: A Path to Recovery from Stroke

Highs, Lows, and Plateaus: A Path to Recovery from Stroke

By Anne Burleigh Jacobs, PT, PhD

amazon.com
Hope: A Stroke Recovery Guide

Hope: A Stroke Recovery Guide

By the National Stroke Association

occupationaltherapyinsights.libsyn.com
How to Conquer Hobbies with One Hand

How to Conquer Hobbies with One Hand

By Paul E. Berger and Stephanie Mensh

50 Tips and Tools to Make Things

amazon.com
How to Conquer the World with One Hand…and An Attitude

How to Conquer the World with One Hand…and An Attitude

By Paul E. Berger and Stephanie Mensh

amazon.com
How to Get SSI and Social Security Disability: An insider’s Step by Step Guide

How to Get SSI and Social Security Disability: An insider’s Step by Step Guide

By Mike Davis

amazon.com
I’ll Carry the Fork! Recovering a Life After Brain Injury

I’ll Carry the Fork! Recovering a Life After Brain Injury

By Kara L. Swanson

amazon.com
In Praise of Slowness: Challenging the Cult of Speed

In Praise of Slowness: Challenging the Cult of Speed

By Carl Honoré

amazon.com
I’ve Been Thinking…Reflections, Prayers, and Mediations for a Meaningful Life

I’ve Been Thinking…Reflections, Prayers, and Mediations for a Meaningful Life

By Maria Shriver

amazon.com
Lessons from the Ancients: A Humorously Helpful Guide for Caregiving

Lessons from the Ancients: A Humorously Helpful Guide for Caregiving

By J. Dyess Calhoun

amazon.com
Like A Bolt: Tragedy to Triumph After Stroke as I Lived It

Like A Bolt: Tragedy to Triumph After Stroke as I Lived It

By Mary Morgan

amazon.com
Living with Stroke: A Guide for Families

Living with Stroke: A Guide for Families

By Richard Senelick, M.D., and Karla Dougherty

amazon.com
Loving What Is: Four Questions that can Change Your Life

Loving What Is: Four Questions that can Change Your Life

By Byron Katie with Stephen Mitchell

amazon.com
Mediations for Caregivers: Practical, Emotional, and Spiritual Support for You and Your Family

Mediations for Caregivers: Practical, Emotional, and Spiritual Support for You and Your Family

By Barry J. Jacobs, PsyD, and Julia L. Mayer, PsyD

amazon.com
Mom Had a Stroke

Mom Had a Stroke

By Delanie L. Stephenson

amazon.com
My Stroke of Insight: A Brain Scientist’s Personal Journey

My Stroke of Insight: A Brain Scientist’s Personal Journey

By Jill Bolte Taylor, Ph.D.

amazon.com
Navigating the Complexities of Stroke

Navigating the Complexities of Stroke

By Louis R. Caplan MD

amazon.com
Nolo’s Guide to Social Security Disability: Getting & Keeping Your Benefits

Nolo’s Guide to Social Security Disability: Getting & Keeping Your Benefits

By David A. Morton III, M.D

amazon.com
Now One Foot, Now the Other

Now One Foot, Now the Other

By Tomie dePaola

amazon.com
One-Handed in a Two-Handed World

One-Handed in a Two-Handed World

By Tommye-Karen Mayer

amazon.com
One Stroke, Two Survivors

One Stroke, Two Survivors

By Berenice Kleiman

amazon.com
Port in The Storm: How to Make a Medical Decision and Live to Tell About It

Port in The Storm: How to Make a Medical Decision and Live to Tell About It

By Cole A. Giller, M.D., Ph.D.

amazon.com
Positive Caregiver Attitudes

Positive Caregiver Attitudes

By James R. Sherman, Ph.D

amazon.com
Rewire Your Brain, Rewire Your Life: A Handbook for Stroke Survivors & Their Caregivers

Rewire Your Brain, Rewire Your Life: A Handbook for Stroke Survivors & Their Caregivers

By Bob Guns

amazon.com
Stroke, Brain Assault

Stroke, Brain Assault

By Madelina A. DePaz

amazon.com
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Stroke Connection Magazine

By American Stroke Association

strokeassociation.org
No image found

Stroke Smart Magazine

By National Stroke Association

stroke.org
Stronger After Stroke: Your Roadmap to Recovery

Stronger After Stroke: Your Roadmap to Recovery

By Peter G. Levine

amazon.com
No image found

Tactus Therapy Solutions

12-page list of apps

tactustherapy.com
Talking About Aphasia

Talking About Aphasia

By Susie Parr, Sally Byng, and Sue Gilpin with Chris Ireland

amazon.com
The Brain that Changes Itself

The Brain that Changes Itself

By Norman Doidge, M.D

Stories of Personal Triumph from the Frontiers of Brain Science

amazon.com
The Calm Before the Storm: A Stroke Survivor’s Story

The Calm Before the Storm: A Stroke Survivor’s Story

By Delanie L. Stephenson

amazon.com
The Comfort of Home for Stroke: A Guide for Caregivers

The Comfort of Home for Stroke: A Guide for Caregivers

By Maria M. Meyer and Paula Derr, RN with Jon Caswell, Stroke Connection Magazine

amazon.com
The Magic of Humor in Caregiving

The Magic of Humor in Caregiving

By James R. Sherman, Ph.D

amazon.com
The Stroke Recovery Book

The Stroke Recovery Book

By Kip Burkman, M.D.

amazon.com
The Ten Things to Do When Your Life Falls Apart: An Emotional and Spiritual Handbook

The Ten Things to Do When Your Life Falls Apart: An Emotional and Spiritual Handbook

By Daphne Rose Kingma

amazon.com
The Tough & Tender Caregiver: A Handbook for the Well Spouse

The Tough & Tender Caregiver: A Handbook for the Well Spouse

By David A. Travland, Ph.D. and Rhonda Travland

amazon.com
To Love What Is: A Marriage Transformed

To Love What Is: A Marriage Transformed

By Alix Kates Shulman

amazon.com
You Can Do It! 105 Thoughts, Feelings and Solutions to Inspire You

You Can Do It! 105 Thoughts, Feelings and Solutions to Inspire You

By Paul Berger and Stephanie Mensh

amazon.com

Our Programs

 
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Stroke Camp
 

We are United Stroke Alliance

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Making a Difference
 

"I see people make new friendships, believe in themselves again, challenge themselves, expand their horizons."

Marylee Nunley Executive Director - Our Organization

"Since Bob's stroke over 3 years ago, the four camps we have attended have been our foundation of hope, support, education, positive networking, and friendships. To be part of a group which truly accepts and nourishes who we are, as either a survivor or caregiver, is extraordinary."

Judy Caregiver

"The entire experience was unforgettable and I will carry it with me always. I have volunteered many times, but never have I worked with a nicer group of people and felt more 'inspired'."

Occupational therapist/volunteer

"Amanda had her first manicure as she had always been embarrassed at the way her hand looked. All her life Amanda had been looking to fit in and for someone to understand what her life was like, after a journey of almost 30 years, she had finally found what she had been looking for.
(Amanda had a stroke in 1984 at 1 day old.)"

Barbara Amanda's mom/caregiver

"I am most gratified when I see caregivers and survivors enjoying themselves when they are engaged in different activities and interacting with others."

Helen Volunteer

"What I like most about camp is watching campers evolve and grow! Seeing newbies transform from shy, hesitant, and withdrawn to engaged participants with new hope for the future. Seeing the continued growth of return campers and to watch this growth continue year to year."

Rebecca Volunteer

"We wanted to thank-you form the bottom of our hearts for the opportunity to participate in such a life changing weekend. Brian came home with a new sense of Hope, Kira with a sense of gratitude, and our 4 yr. old is asking when we can return. This was an amazing event that we were blessed to share. Words can never express just how much this retreat helped our family."

Kira

"Our attitude about Paul's stroke and to each other has changed tremendously since camp!"

Bev Caregiver

"A 48-hour caregiver respite. Relentless pampering by the staff and by the volunteers. Caregiver-to­caregiver sharing as well as survivor-only activities. Fun and games. Arts and crafts. Music and laugh-out­loud skits. Educational. Practical. Spiritual. Best thing we've done in 11 years."

Pam Caregiver

"Being able to see how the survivors and caregivers have developed and progressed since their hospitalization brings me hope and renewed energy."

Amanda Volunteer

"My experience was a well worth trip to Mt. Charleston, there was so much offered that you never was bored and excited to move on to the next adventure. Everyone was so loving and caring its amazing the feeling you get from being with people who truly care. I'm a Voluntary at Siena and I will to all my patient who had a stroke to be aware of Stroke Retreat and how you can live after a Stroke and mostly to experience happiness and hope again. Keep it going worth coming to. Blessing, Cordella Rubin"

Cordella Rubin Survivor / Volunteer

"I most enjoyed the camaraderie with other stroke survivors my age."

Kevin Survivor

"The thing I like most about Stroke Camp is meeting and connecting with other survivors and the total acceptance you feel from everyone. I honestly believe you could add the word 'vital' to your list of adjectives."

Thea Survivor

"When you see something as simple as Stroke Camp make such a big difference in the lives of stroke survivors and caregivers it is truly heartwarming. Knowing that our support provides such a positive experience for the campers and the volunteers is a true gift."

Neurological Institute Comprehensive Stroke Center

"I got a glimpse into what caregivers do 24/7. A very humbling experience."

Lisa Volunteer

"My husband and I look back on Stroke Camp as a turning point in our marriage and family life. Things had deteriorated pretty badly after my stroke, but camp showed us a new way. We backslid a few weeks later and then my husband really decided to make things different and it has been WONDERFUL! We are so grateful for all Stroke Camp meant for our kids and us."

Robin Survivor
 

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